研究背景：诊断初期HIV感染者的躯体功能、心理健康、社会功能和人际关系严重受损，为诊断初期HIV感染者提供姑息关怀是有效的关怀方式。我国诊断初期HIV感染者的姑息关怀需求尚待明确。

研究目的：（1）修订“HIV感染者姑息关怀问题与需求问卷”，并检验其信度、效度。（2）描述我国诊断初期HIV感染者姑息关怀存在的问题与需求。

研究方法：本研究为描述性研究。（1）在PNPC-sv问卷的基础上，针对HIV感染者的特征，对问卷进行内容及文化调试，经过4位专家对问卷内容及条目确认形成问卷初稿。邀请5位从事艾滋病、流行病学及护理专家对问卷进行效度检测，之后抽取111名佑安医院HIV感染者进行信度检测。（2）采用便利抽样的方法，抽取2016年8月至2017年4月于北京佑安医院、北京地坛医院就诊的190名诊断初期HIV感染者，采用研究者自行设计的一般资料和疾病资料调查表、“HIV感染者姑息关怀问题与需求问卷”对其目前存在问题及需求进行问卷调查。（3）采用目的抽样的方法，抽取2017年3月至2017年4月于北京佑安医院就诊的12名诊断初期HIV感染者进行访谈，采用Colaizzi的现象学资料分析方法进行分析。

研究结果：

（1）“HIV感染者姑息关怀问题与需求问卷”的内容效度指数为0.964，条目内容效度指数为0.8~1.0；问卷中“存在问题”部分的Cronbach’α系数为0.956，各维度介于0.756~0.888之间，“需求”部分Cronbach’α系数为0.965，各维度介于0.851~0.906之间。探索性因子分析共提取出6个公因子，累计方差贡献率为75.4%，各条目的因子负荷介于0.504~0.879之间。

（2）诊断初期HIV感染者姑息关怀中存在的问题与需求整体得分较低，存在问题的平均得分是（14.73±13.55）分，需求的平均得分是（14.55±15.18）分。心理问题和经济问题维度存在问题得分与需求得分相对较高。

（3）采用Colaizzi的现象学资料分析方法对资料进行分析，最终提炼出5个主题：心理关怀需求、精神关怀需求、社会交往需求、消除歧视的需求和治疗相关需求。

研究结论：“HIV感染者姑息关怀问题与需求问卷”具有较好的内容效度、结构效度和内部一致性。诊断初期HIV感染者姑息关怀问题与需求的整体水平较低，但在心理和经济方面存在较多问题和较高的需求，有必要得到医护人员的关注。

Background: The newly diagnosed people living with HIV always have multidimensional problems, like damaged mental health，physical and social function, and fragile interpersonal relationship. Palliative care is an effective way to support the newly diagnosed patients. However, the palliative care needs in newly diagnosed people living with HIV remain to be clarified in China.

Objectives: (1) Revise and form the Problems and Needs in Palliative Care Questionnaire for HIV infected individual, then test its reliability and validity. (2) Describe the palliative care problems and needs of the newly diagnosed people living with HIV in China.

Methods：A descriptive design was used in this study. (1) The first version of the questionnaire was formed based on the PNPC-sv and characteristics of HIV infectors, contents and cross-cultural adaption, and finally confirmation from 4 experts. Another 5 experts mainly engaged in the field of HIV/AIDS, nursing, and epidemiology were invited to evaluate the questionnaire’s validity. Then 111 people living with HIV were selected to evaluate the questionnaire’s reliability. (2) Convenient sampling was adopted from Beijing Youan Hospital and Beijing Ditan Hospital from August 2016 to April 2017. Totally 190 newly diagnosed individuals were recruited. The palliative care needs were measured by the Problems and Needs in Palliative Care Questionnaire for HIV infected individual. (3) Meanwhile, purposive sampling was used to recruit 12 individuals as participants in the interview. Colaizzi’s phenomenological procedure was used to analyze the interview data.

Results： (1) The Scale Content Validity Index (S-CVI) of the Problems and Needs in Palliative Care Questionnaire for HIV infected individuals was 0.964, and the Item Content Validity Index (I-CVI) were ranged from 0.8~1.0. The Cronbach'α coefficient of the "problem part" was 0.956, the dimensions’ Cronbach'α coefficient were ranged from 0.756 to 0.888. The Cronbach'α coefficient of the "needs part" was 0.965 and the dimensions’ Cronbach'α coefficient were ranged from 0.851 to 0.906. Exploratory factor analysis showed 6 common factors were extracted, the cumulative variance contribution rate was 75.4%, the factor loading were ranged from 0.504 to 0.879.

(2) General scores of palliative care problems and needs were low. The average score of the palliative care problems was (14.73±13.55), and the average score of needs was (14.55±15.18). Scores of problems and needs of finatial and psychological dimensions were higher.

(3) Five themes were extracted from the interview data, including psychological care needs, spiritual care needs, social needs, anti-discrimination needs, treatment-related needs .

Conclusions：The Palliative Care Problems and Needs Questionnaire for HIV infected individuals has good content validity, structural validity and internal consistency reliability. The overall level of palliative care in the newly diagnosed people living with HIV is low, but there are more problems and higher needs in the psychological and economic aspects, and it is necessary for health care workers to take more attention.